We all get lost from time to time, whether you just lose parts of yourself or you have lost all of yourself that you have previously known. Personally I lost a lot of myself for a few years when I moved home to recover and transition. It has taken me upwards of three years to get back to the central parts of my being, most of which was taken back throughout my transition. Living an inauthentic life took me in various directions none of ,which were bringing me closer to where or who I needed to be, thus I was lost.
With my GRS coming up in a few weeks I have been stressed, while trying to preoccupy my mind. This has lead me down each adventure and memory of my transition and left me grateful that I’ve made it this far since my paralysis. On the other hand it has me trying to line up my next adventure as well as post secondary again. Everyone that knows me knows I like to keep myself busy, so you probably know that waiting on this operation and the college admissions waiting process has me antsy.
One of the many perks of my fair ride of a life is that even in young adulthood I have the physical and emotional coping skills to tie myself over until after my surgery. I’ve been spending a tonne of time both making music and getting back into a calisthenic workout routine so that I’m not just getting in shape, but being creative as well. I may always have a remaining physical impairment, but it taught my humility, self love, and true perseverance so I will continue to just embrace my paralysis as one of the best things that ever happened to me.
Moving back home to transition has been rocky at the best of times, but that was partially my own fault for leaving a majority of my friends and socialites about 10 hours away. Moving back was not a brilliant idea, but it certainly reminded me of the resilience still left in me to not give up on my own goals no matter how hard it gets, or how rltemoted I was to walk away from everything. I’m even trying to plan my move to somewhere relatively far away within a few months after my operation to commence a new chapter in this odd little life of mine in a brand new place.
How’s everybody doing?
Everyone seems to think that with enough hard work and enough time that one day I will miraculously wake up fully recovered. the reality is that I will have to maintain my dexterity, strength and range of motion for the rest of my alive days on this Earth, unless I want to backslide and revert the progress I have made over almost sixty-three months. Each and every time I have a bad day physically is a great reminder that over any other thing my health comes first. yes Some days the pain levels are uncontrollable and I would love to just say,” f#ck it”, but unfortunately I am a highly driven person and I have goals to attain, and missed opportunities to catch up on.
No My physical and visual impairments were never penciled into my dream life, but in spite of the terrible days the few good ones make every second of the struggle worth my time. It has taken me years to come to this conclusion, but all it take for even the worst of days to become good ones is a single movement or motion done correctly with the appropriate muscles firing on command. during the plateaus and the pain spikes these over joyous moments are few and and far between, but somehow they are the times that keep me dedicated to my own recovery.
Desired outcomes are not always what you get when it comes to neuroplacticity. Only now am I beginning to rewire the mis-wired neuropathways in the left side of my body. It is actually quite intriguing to be able to get a muscle to perform the desired movement with help of neuro-muscular electrical stimulation. from the muscles in my ankle that were performing opposite functions to the muscles in my arm and wrist that didn’t fire at all, with this body I occupy each and everyday is a whole new adventure.
Sorry I have not been keeping up withe the regular updates, I have been struggling to come up with topics for this blog lately… feel free to drop any topic suggestions down below or shoot me a DM on Instagram @mx.addyblake
I’ve been doing this for what feels like a long time now and no matter how much I overdo it or if I have a balance between my recovery and my leisure I hit a wall and sleep for a day or two every 3 to 6 months. This past weekend I hit that wall and despite getting my normal amount of sleep, as soon as I completed my daily routine I curled up and fell asleep for the rest of the day. Normally I wake up a bit angry for wasting a day, but this time I felt at least partially rejuvenated and it was glorious. Continue reading “The Perpetual Burnout in Recovery”
This one was another reader suggested topic so here’s my attempt. With all the ups and downs of the roller coaster we call life it can be quite a task to learn to see things in a positive light and not kick ourselves when we are down. In both my transition and my continuous physical rehabilitation finding the positive aspects and internal happiness has been a skill I had to learn to not throw in the towel every other day.
One of the most helpful tricks I rewired my brain to do subconsciously and modify my own thoughts was to acknowledge the bad, but only give attention and focus to all the positive aspects of any scenario. Life truly is about finding the balance so instead of wallowing in the bad parts I figured out how to enjoy even the worst of my dysphoria days and the static days in recovery.
Some days I have limited to no functional mobility in my hand to this day, especially when I am stressed or sleep deprived. Instead of focusing on the anger I sometimes feel towards my paralysis I thank my body for not giving me any say and forcing me to take a rest day that I never take unless I cannot function. A day off here and there shouldn’t be an issue unless you’re a workaholic towards your personal goals like myself.
When my dysphoria get’s so bad that I wish I could rip my own skin off I find one part of my body that I at least like and find a clothing article that emphasizes it so that even my own attention is drawn to it all day. For me this is usually my bust despite all the pain it causes me. Sometimes distract-o-boob is all I need to get through an escalated dysphoric day.
I promise that if you can find one positive in every day and hold onto it that you will make it no matter the struggle. If you are struggling also do not forget to reach out to a friend or connect with your mental health professional and learn some healthy ways to cope.
Love and light,
In a few days I get the wonderful opportunity to celebrate the date of my paralysis and the increase over all these years of my chronic pain. Well that was an extremely dark intro and while yes I may be celebrating those things there is no one thing that has led to more personal growth, internal struggle, and pure happiness from within. On that note I’m going to talk about all the things I’m grateful for thanks to my recovery as I sit here writing this today.
The last 5 years I have been my own personal science experiment day in and day out. Whether it included applied past knowledge or I was just learning along the way once again I became the expert of my diagnoses learning what was best and worst for my recovery. With that knowledge I know I can tackle any task at hand no matter the time or effort it takes.
Having to be in a very committed relationship with my recovery despite all the struggles and even the times where I pushed my body past limits to where it got unhealthy. Every day despite wanting to fold and walk away I decided to fight it and prove everyone including myself wrong. It was the traumatic situations that I ended up in as a queer person with a physical disability that taught me to fight even while having flashbacks for days on end so intense I barely slept every night for a year afterwards. Knowing how far I had come and with the support of a few phenomenal friends I made it through.
3. Indomitable Spirit
Despite the hundreds of bad days I’ve had in this period I still got up every day and trudged on with a smile on my face. It was only this year that smile stopped being a mask of my physical and emotional pain, but hey we all have to fake it until we make it sometimes. This year I also started having flashbacks to the moment that my paralysis set in and I had to find the hope to recover instead of getting trapped in the fear of what was to come and the waterfall of tears pouring down my face.
4. A Modified Prospective
Trading one illness for another and adding a loss of some of my visual field in both eyes. Literally I see everything a little bit differently now. This is amazing I used to hate life so much and even with less joy than struggle in recovery the light has been so much more valuable post paralysis. It was the beginning of a streak of traumatic events that taught me to find the positive aspect in every situation. Now I am always looking for the lesson in the bad and appreciating the good.
5. My Authentic Self
My paralysis taught me that no matter how hard anything is I can make it out on my own so after my body was what I considered healed enough to begin my medical transition I did. With the loss of muscle mass the muscle tension in the left side of my body was conveniently reduced and it became easier to heal once again. As most trans people would tell you starting that process was the beginning to an end and removing that weight of not being yourself makes every day a lot easier. Yes I had to disown most of my family once I took those steps, but the self-love that took their place in my life more than made up for it.
I guess the really cliche thing to say would be I love my imperfect life.
I would like to start off by saying I’m sorry that I have been AWOL for a while and I miss interacting with you guys. Up until the holidays i have been trying to mentally prepare to see my family this holiday season and it did not work. I only know a couple of people who normally do not struggle with the holiday’s and these people were on the same ship sailing to the same unknown destination.
As rough as these last weeks may have been I can say that some awesome things happened too. For example I got the chill with a bunch of friends instead of seeing my disowned family on the twenty-fifth. Thanks to struggling with my upcoming trauma dates I have been tackling my mind with obsessive amounts if exercise and have made some progress with my micro movements. Seeing the good in the bad has been one of those beautiful skills I had to learn since hemiplegia
Spending the holidays with a bunch of queer friends where nobody’s gender identity was an issue or hot topic was nice. It may have even been the first time I ever got those warm fuzzy holiday feelings that I have heard people rave about my entire life: Pizza, board games, friends, laughter. The kind of event that makes me not want to spend another holiday with someone that shares a gene pool or bloodline with me ever again.
I need to slow down again I have been pushing myself too far for too long and it is probably why my pain is high resulting in varying levels of sickness. I might even make it a goal for next year: be less sick haha. I hope you’re all doing well and are having love filled holidays.
I cannot believe that I started this beautiful and fulfilling medical journey to becoming who I had always been on the inside a year ago. So far my medical transition has been relatively seamless and fairly “straight-forward”. Other than some dosage adjustments here and there and the torment of dysphoria I experience as a non-binary person. The social transition (name, pronouns etc.) Has been a lot tougher. It has been an amazing year where recently I even started to see my inner me and not the toned fit boy I hid as for the longest time. In no way is being trans or transitioning easy, but just as I said in my speech, it is worth it no matter the struggle. For the first time in my life I’ve been at peace with my body and I’m still recovering from paralysis too.
At the beginning I truly believed I identified as female, but it did not take long for me to realize i was much more in the non-binary section of the gender spectrum and this was different because personally I experience bits and pieces of both trans feminine and trans masculine dysphoria. My dysphoria is the lowest when I present as androgynous as I can. I have always loved being kind of androgynous so it’s no real surprise that is where i am most comfortable, but with my now very feminine figure it can be harder to present androgynous without wearing a bunch of men’s clothes. Even at the beginning I had started doing facial hair electrolysis but I quickly realized it made me more dysphoric to not have the shadow or stubble so I stopped the hair removal and am enjoying letting it fill back in.
The social transition was the hardest especially because as soon as everyone that was going to roll with it started using she/her I changed my pronouns to they/them and gender neutral pronouns can be fairly hard for people to grasp. She Is still more acceptable than he, but there are very femme people who I let use more feminine pronouns or nicknames to identify me. It’s hard loving the chest I developed over the last year and yet sometimes wanting to tape it away and look as masculine as possible for both my own comfort and safety. I don’t keep anyone in my life that doesn’t respect my name or pronouns, which in turn forced a lot of people out of my life. I may not have a perfect body, but for once it feels like I am living in my skin and no longer a costume or mascot that I fully disassociate with
Above 11 months on HRT
Above: 2 years before HRT